Resources for Survivors
Tongue-Tied: A Story NOT Silenced by Oral Cancer
View Eva’s full-length Keynote Presentation (56 min)
Mobile Download: FREE
Medium Download: $29.95
Large Download: $49.95
Mobile (350MB): Click to Purchase and Download
Medium (604MB): Click to Purchase and Download
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Public Service Announcements on Oral Cancer
Eva Grayzel’s Public Service Announcement for the ADA (American Dental Association)
Additional Resources
The Oral Cancer Foundation Support Group Support Group
This is my favorite forum. Ask any question you like and know answers by members of the forum will be monitored by professional researchers and doctors for validity.
Stanford Health Library provides scientifically-based medical information to help people make informed decisions about their health and health care. All services are free. Simply fill out a request form online.
Head & Neck Cancer Alliance Support Group
SPOHNC: Support for People with Oral and Head and Neck Cancer Support Book
This book is helpful and free.
National Cancer Institute on Head and Neck Cancer
A comprehensive fact sheet on the why and how of oral, head and neck cancer.
American Cancer Society Head and Neck Support Group
Oral Cavity and Oropharyngeal Cancer, American Cancer Society
Whether you (or a loved one) are worried about developing oral cavity or oropharyngeal cancer, have just been diagnosed, are going through treatment, or are trying to stay well after treatment, the ACS offers a detailed guide that can help you find the answers you need.
Can I get Oral Cancer from Oral Sex? Mount Sinai Hospital, August 2011
This a great visual about HPV oral cancer and it’s symptoms. Worth a look!
For the Newly Diagnosed: Consider Dental Issues Before Beginning Cancer Treatment, Cure Magazine, December
Dental care before and during treatment is critical for future dental health. Be proactive to prevent future dental complication. I didn’t know anything about this. Just before radiation started, a medical professional asked me if my teeth were checked. It turns out, I needed a tooth pulled since there was no time to wait and see if the problem would resolve.
Human Papillomavirus and Survival of Patients with Oropharyngeal Cancer, New England Journal of Medicine, July 2010
Your chances of surviving HPV positive oral cancer is better than if it’s not HPV related.
The Prevalance of Oral HPV in the US, Journal of the American Medical Association, January 2012
Among men and women aged 14 to 69 years in the United States, the overall prevalence of oral HPV infection was 6.9%, and the prevalence was higher among men than among women.
Gender Equity and HPV-Associated Cancers in the United States by Maura L. Gillison, MD, PhD, Journal of Clinical Oncology, October 2011
Article | Podcast
Population-level incidence of HPV-positive oropharyngeal cancers increased by 225% (95% CI, 208% to 242%) from 1988 to 2004
The Emerging Role of Human Papillomavirus in Oropharyngeal Squamous Cell Carcinoma, CDE World Lifelong Learning, September 2011
Although dentists are trained to perform a thorough intra-oral examination of the oral cavity proper both by direct vision and palpation, it is now increasingly important that they also ensure similar careful and thorough examination of the oropharynx. Despite the fact that early HPV-associated oropharyngeal carcinoma may not be clinically detectable, other signs and symptoms can be present, including localized pain/swelling, sore throat, dysphasia, referred pain to the ipsilateral ear, and cervical lymphadenopathy. Therefore, for earlier detection of OPSCC, dentists should also perform a thorough visual and tactile soft-tissue extra-oral examination of the head and neck on all adults, not just those with historical traditional risk factors.
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