Resources for Survivors

Tongue-Tied: A Story NOT Silenced by Oral Cancer

View Eva Grayzel’s full-length Keynote Presentation (56 min)

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Learn more about Eva at www.EvaGrayzel.com


Additional Resources

To Life

Keynote presentation at the 2012 British Columbia Cancer Agency Annual Conference

Oral Cancer Foundation Patient Forum

This is my favorite forum. Ask any question you like and know answers by members of the forum will be monitored by professional researchers and doctors for validity.

The HPV Connection

The human papilloma virus (HPV) is a double-stranded DNA virus that infects the epithelial cells of skin and mucosa. The moist epithelial surfaces (squamous cells) include all areas covered by skin and/or mucosa such as the mouth interior, throat, tongue, tonsils, vagina, cervix, vulva, penis (the urethra – the opening), and anus. Transmission of the virus occurs when these areas come into contact with a virus, allowing it to transfer between epithelial cells. While it is established now that sexual contacts, both conventional and oral, are means of transferring the HPV virus through direct skin to skin contact, it is still poorly understood what other transfer pathways may exist. It is highly unlikely that the virus can live for long on inanimate objects outside of a cell.

National Cancer Institute on Head and Neck Cancer

A comprehensive fact sheet on the why and how of oral, head and neck cancer.

Thyroid, Head and Neck Cancer Foundation (THANC)

THANC developed The Head & Neck Cancer Guide as a comprehensive resource to help you and your loved ones understand and prepare for every step of the cancer journey.

Can I get Oral Cancer from Oral Sex? Mount Sinai Hospital, August 2011

This a great visual about HPV oral cancer and it’s symptoms. Worth a look!

Oral Complications of Chemotherapy and Head/Neck Radiation

This explains the oral complications common in cancer patients, especially those with head and neck cancer. Preventing and controlling oral complications can help individuals continue cancer treatment and have a better quality of life.

For the Newly Diagnosed: Consider Dental Issues Before Beginning Cancer Treatment, Cure Magazine, December 2011

Dental care before and during treatment is critical for future dental health. Be proactive to prevent future dental complication. I didn’t know anything about this. Just before radiation started, a medical professional asked me if my teeth were checked. It turns out, I needed a tooth pulled since there was no time to wait and see if the problem would resolve.

 

Articles

Importance of Radiation Oncologist Experience Among Patients With Head-and-Neck Cancer Treated With Intensity-Modulated Radiation Therapy (IMRT)
American Society of Clinical Oncology, 2016

Epidemiology of Human Papillomavirus–Positive Head and Neck Squamous Cell Carcinoma
Journal of Clinical Oncology, September 8, 2015

Rising Population of Survivors of Oral Squamous Cell Cancer in the United States
Cancer, May 1, 2016

HPV Infection in the Head and Neck Region and Its Stem Cells
Journal of Dental Research, 2015

Oral Cancer Care Struggles with Three Misconceptions 
by Jo-Anne Jones, RDH, MS
Dentistry Today, April 2016

Cancer Prevention and Treatment: The Dental Hygienists Role
by Cathy Draper, RDH, MS
Access Magazine, Nov 2010

HPV Vaccine Provides Protection at Multiple Sites, Even Among Some Previously Exposed
American Association for Cancer Research, April 2015

My Journey with Cancer: A Dental Hygienist’s Perspective
by Jennifer Cicci, RDH
CDHA Oral Health Canada Magazine, Spring 2015

Researchers Discover Genetic Fingerprint of HPV Virus in some Head and Neck Cancers
Oral Cancer Foundation, January 2015

Failure to Diagnose and Delayed Diagnosis of Cancer: Medicolegal Issues, The Journal of the American Dental Association, December 2009

Oropharyngeal Cancer Epidemic and Human Papillomavirus, Emerging Infectious Diseases
Centers for Disease Control and Prevention, November 2010

Can Saliva-Based HPV Tests Establish Cancer Risk and Guide Patient Management? Mark W. Lingen, DDS, PhD Section Editor, Oral and Maxillofacial Pathology, September 2010

Human Papillomavirus and Survival of Patients with Oropharyngeal Cancer  The New England Journal of Medicine, July 2010

Oral Cancer Screenings A Must, Say Malpractice Attorneys
Oral Cancer Foundation, March 2011

Other Resources

AAOM Clinician’s Guide by A. Ross Kerr, David Lederman, Hillel Ephros. A concise education on early detection of oral cancer. Includes detailed photographs. Downloadable version of the AAOM Clinician’s Guide.

Issue of the OMS Clinics of North America, guest edited by Hillel Ephros, DMD, MD. Contributions from a wide variety of clinicians on psychological issues in dentistry and oral and maxillofacial surgery. Includes a chapter by Albert Wu and his Johns Hopkins’ associates about how to talk with patients and families when adverse outcomes occur. Another chapter deals with end of life issues and focuses on ethical questions related to advanced oral cancer.

For more information visit the Oral Cancer Foundation.