3

Sticking Out Tongue Straight: An Impossible Feat

I have adopted a sister, a survivor sister Dale Noelle. Tongue cancer became the topic of conversation between my friend Erin’s mother and Dale’s mother over a card game. They agreed Dale and I should meet. For months, our busy schedules didn’t allow us to plan a meeting. But, when I got the message she could attend a lecture I …

1

HPV Negative: So What Was the Cause of Your Oral Cancer if it wasn’t Tobacco?

Nancy: I was diagnosed at age 54. I was a very light smoker and quit altogether at 30.  They attribute my oral cancer to tobacco.  But I have my own idea about it – I used to chew a pack a day of Trident or some other sugar-free gum, chewing constantly. Food for thought. Ed: I used Listerine 3-5 per a day for years …

4

The Complaining Patient: Tumor or Trauma

In the 1996 “Seinfeld” episode called “The Package,” Elaine is blackballed from being seen in medical offices and tries to steal her own medical records to erase her “difficult patient” status. I had a similar experience. I had been seen by one doctor in an Oral & Maxillofacial office for the non-healing sore on my tongue that was becoming more painful. The …

1

Tongue Tasting Sectors

When I tell people I have had 1/3 of my tongue reconstructed, the treatment for late stage oral cancer, the first question they ask is if I can taste everything. fortunately, taste is bilateral so I taste everything on the one side. Ed Merrell who has had his entire tongue removed, says there are taste buds in the little bit …

4

“Dear Eva” – A letter from Yolanda

Hi Eva, I write to you because I’m desperate. I’m a 31 years old mother of two, and my oral cancer is back for the third time. Well, this time around there is no treatment since I have been radiated before. Everyone on the tumor board agrees no treatment should be given, however my radiation oncologist tells me we can …